Digital Discourse or Zen Magnets?

My friend Junk and I began collaborating musically, and we need a name for the band. I sent him a handful of names, and he sent me a handful of names.
Junk’s names:
Once Again
Organic Machine
If I Only New
Seven Junk Bonds
The Light
The Hades Collective
Hello My Name Is
Digital Discourse

My Names:
Zen Magnets
The Soundboard

Last Call
Anger Vent
All That Jazz
The Bee’s Knees
Chum
Just Cause
Rubber Stamp Crusade
Lost And Found
The Norm
Our favorites are Zen Magnets and Digital Discourse. We’ve posted them on our Facedork pages, asking folks which one they prefer, and we’re going to tally up the votes in 24 hours. Please share your opinions with me. WordPress votes count, too!

Looking For A Singer

I want to sing, but it’s just too difficult for me (unless I get sloppy drunk, and I can’t do that every day). My vocal tremor gets worse everyday. So I’m trying to find a singer, someone who I can make music with over the internet, in the “Postal Service” style. For example: the singer would listen to the music through headphones while singing along and recording their vocal track. Then, the vocals would be sent to me via email, and i would mix them into the music. Here’s an example – my friend Dave wrote and recorded the lyrics for this song earlier today (Dec.11th) and sent me the results; here is the rough mix (it used to be called Mandi Lynn, now it’s called Regenerate):

He lives in Delaware and I’m in Colorado. Proof that even 2000 miles can’t stop the rock.

If you love to sing, contact me! Female, male…whatever’s clever. You’d have control over lyrical content, and I’m open to musical suggestion, if that’s your bag of chips. If you’re interested, contact me!


Thank God For Art

I just found out that I was denied my disability. Again. I’m going to appeal the decision, for the second time. I don’t understand. I have a real disease. I’m not faking it. I can’t work at all anymore. At my disability hearing, the Social Security attorney determined that, of 25,000+ possible occupations, my disability would prevent me from doing any and all of them. Their own attorney told the judge that I’m disabled. What do they expect me to do? I applied for disability in February of 2010. I’m coming up on 2 years of waiting. I have no income or health insurance whatsoever. I’m starting to feel like some kind of joke is being played on me. I haven’t had any treatment for my Multiple Sclerosis in 6 months, and the disease is progressing. It gets worse every day. Torrential headaches are going to turn me into a drug abuser (that’s what they’ll call it, without a doctor’s prescription), and who knows what symptoms will manifest tomorrow? My legs are beginning to fail, I can’t speak at all anymore, and I can’t walk up the stairs without being completely winded. Do I have to die to be disabled in their eyes?

I hate not working. I started work at age 14, and worked every year after, until i turned 29 and got MS. I miss work, especially woodwork. Now I’m unable to wield any tool. I’m dangerous with objects of any kind. If it were possible to cut yourself with a pillow, I’d be the guy who would figure out how to do it. I’m so bored. Alyse and I started an Etsy shop, in hopes of drumming up some income. We make artsy decoupage items. My friend Jeanne sent us a box of boxes (one of our preferred medium), and we’re crawling out of our collective skins awaiting it’s arrival. We’ve got ideas (i feel blessed to still have those)… Thank God for art.


On The Hunt

Yesterday I tried to recruit my brother, Hunter, as the lead singer for the Three Sixes. I can’t talk anymore, let alone sing, so I need a singer. Hunter has an awesome voice, and he’s super creative, especially when it comes to writing and melody. I live 2000 miles away, so we’d have to conduct our musical business via the internet. It worked for The Postal Service, and it can work for us. I really miss making music with him. He possesses great musical and songwriting skill. But how do I convince him to join the Three Sixes? I don’t want to scare him off with my buggery, but I can’t stop thinking about it. A wise bard once said: the waiting is the hardest part. Indeed…


Mute

I saw my neurologist yesterday. He told me that i have Primary Progressive Multiple Sclerosis. My crappy doctor in PA misdiagnosed me with Relapsing Remitting M.S., which is the least destructive and the most common form. I knew he was wrong; i’ve been steadily getting worse since i was diagnosed incorrectly. Primary Progressive M.S. is the most destructive and the least common form. It’s the kind of M.S. that kills. So that sucks. I can’t speak anymore, and my right hand is completely useless; I chicken-peck with my left hand on the keyboard. I toyed with the idea of using a dry-erase board to communicate with those around me, but it turned out to be a difficult process with only one hand. For now, I’m a mute. So that sucks, too. I had been singing for most of my life, until Multiple Sclerosis took my voice. There is a treatment for vocal chord tremors: Botox injections. In the throat. Every other month or so. That’s gotta suck. I still write music at every opportunity, whatever i can write with one hand. I’m learning theory, which I should’ve learned as a teenager. Better late than never. I’m looking forward to honing my songwriting skills, with or without my voice and my right hand. I think I’m doing ok, considering…

I’m still waiting on a decision from Social Security on my disability status. Hopefully, the pay that I’ve earned from the federal government for my work as a cripple will cover most of the cost of the Stem Cell Treatment. I started a ChipIn for it, if anyone is feeling generous: http://kylesevens.chipin.com


Paradise

Alyse and I travelled to Maryland a couple of weeks ago for my disability hearing in Pennsylvania. We stayed with Jeanne for 8 days in Paradise, just passed Catonsville. We had such a great time, the whole time. I was expecting a crap day on the day of my disability hearing, but it was everything thing else. Jeanne runs an after school art thing with 8-11 year old kids. We were blessed to be present to meet all of these kids. I had a better time with these kids than I had ever had with other human beings in my life. They were so kind and creative and funny and human. They made me feel like a kid; it’s a feeling that i haven’t felt since my late teens. I wrote a song with them. I layed down drums and bass, then had each of them pick an instrument and play along, and I made an audio recording of them making art. After we got home, I edited the jumbled mess so that it made musical sense. Here is the result…

While we were in Maryland, my grandmother assembled the family at her house for an early Thanksgiving. Now, my family is a little screwy, so this was no easy task. I saw more family members under her roof during that one day than i ever had in all my years at any holiday. Throughout the day, I thanked her profusely, and she always replied with a humble “Oh, it was nothing…”
But it was something;  an awesome something! I got to spend an early Thanksgiving (my favorite holiday) with all of my kin whom I never get to see! It was more than i could’ve thought to ask for. It was good for my soul to see everyone, and it’s had a lasting effect. In the weeks since we’ve been back to Colorado, I’ve had a few blissfully introspective moments, all very much welcome, and all inspired by my family back in Maryland.

As soon as we got off the plane and into our rental car, we noticed how bad Maryland driving was. All hustle and bustle, me first and the gimme-gimmes and the like. people were weaving in and out traffic everywhere: side roads, main streets, highways…everyone else was more important than the next. Stressful. Tense. It didn’t really sink in until we got home. But it didn’t ruin our time. We created too many good memories to remember a bad time. It’s great to have good memories of a place that created so many bad ones. I think I’ll always have a love/hate relationship with Baltimore. Most of my Baltimore memories are…interesting, to say the least. But I’m glad i haven’t forgotten them, as I once told myself I would. A lot of good came out of my experiences in Baltimore. Alot of my family lives in Baltimore, and I grew up there, so I believe that it will always have a piece of me, no matter where I end up. And I’m ok with that.


Stem Cell Treatment

I recently became aware of stem cell treatment for multiple sclerosis. there is a facility in Jamaica that offers the treatment for the low price of $15,000 (price includes flight, board, and treatment). the facility is called the “American Stem Cell Treatment & Anti-Aging Center”, located in Montego Bay, Jamaica.  the treatment for Multiple Sclerosis is as follows:

CCSVI – Multiple Sclerosis Treatment Combined with Stem Cell Treatments

The American Stem Cell CCSVI/MS treatment has proven to be the treatment of choice for those diagnosed with multiple sclerosis because unlike conventional CCSVI treatment, we combine cell therapy together with repair and regeneration for overall healing. We don’t focus on masking the symptoms but rather focus our efforts on a drug-free method of treatment which will contribute to a long-term better quality of life for our patients.

It was Dr. Paolo Zamboni who was responsible for the development of the hypothesis which states that there has been a chronic cerebrospinal venous insufficiency as well as a link between multiple sclerosis and Doppler detected venous valve insufficiencies. It has been found that a stenosis or a narrowing of the chest cavity or the jugular vein in the neck caused these. The narrowing of these regions in the human body causes difficulty for blood to flow from the brain as well as the upper spinal cord, which in consequence results in edema within the cerebral veins, which also affects the blood-brain barrier.

Autoimmune inflation also occurs as a result of the constricted blood vessels and this damages the brain as well as the protective myelin coating of the nerves. Proper stem cell treatment allows the narrowed veins to widen and improve the blood flow, which provides relief for patients who suffer from back pressure and inflammation, and minimizes damages to the brain and myelin.

Prior to any stem cell treatment, the patient is required to undergo a series of blood tests and a comprehensive physical assessment.

Stem Cell Treatment for Multiple Sclerosis

The ASCAAC partners with the Ecua-American Laboratories to develop processes for neural cell diagnostics. The protocols developed are significant in accurately measuring blood flow and any pressure differences which occur around the stenosis. We have state of the art equipment for cat scan and imaging to create the most precise images of the brain and blood vessels, and we know that precise transplantation is extremely important especially for patients who are diagnosed with stenosis and its severity is still unknown.

A new venography protocol for chest pains, head, and the neck (CTPH) has also been developed by the ASCAAC which has been designed for a comprehensive view of the whole nervous system. Normal people would have blood flowing from the head to the heart, which the various venous valves help to maintain. However, in CCSVI patients, the flow of blood back to the head is affected.

The Liberation Procedure involves an Xray scan which is used in aiding a balloon-tipped catheter to precisely land at the location of the jugular veins. Upon the catheter’s reach of the affected area, the balloon tip will widen the area affected by stenosis. This procedure has been developed to complement stem cell therapy, because liberation angioplasty alone can widen the narrowed veins and increase blood flow although when combined with stem cell therapy there is a possibility of stimulating growth in damaged areas located in the nervous system. It can also contribute to a reduced inflammation anywhere in the body. It has been reported that patients who undergo this treatment have better chances of healing at an increased rate. More information can be found @http://www.nationalmssociety.org/

i’m crazy excited about this. the prospect of regaining some use in my right arm and voice is saving my life right now. i’m definitely going through with it, provided i can raise the $15,000. my disability hearing finally revealed itself. i applied in Feb. 2011, 20 months ago. if i win my case, i’m due 20 months of disability pay. that will surely help. i also started a fundraising campaign @ http://kylesevens.chipin.com/stem-cell-treatment-for-multiple-sclerosis  . i’ve been waiting for 20 months for stem cell treatment to make some headway in the states, but i believe that we’re still some time away from acceptance in the states. i’ve always wanted to go to Jamaica, anywho. if i’m going to have neck surgery, Jamaica is where i want to have it done.


Follow

Get every new post delivered to your Inbox.

Join 516 other followers